Patient Advisory Committee

Spokeswoman of the Patient Advisory Board

Board member of the German Sarcoma Foundation

In 2005, I was diagnosed with an extremely rare, very malignant tumor (clear cell sarcoma) that had already metastasized. Since then, I have been committed to improving the quality of treatment, especially in the field of sarcomas, and I am a board member of the German Sarcoma Foundation. I am also a member of the Patient Advisory Board of the DKFZ in Heidelberg.

Especially in the case of malignant diseases, research plays an extremely important role. Through my involvement in various research projects, I also joined the Patient Advisory Board of the NCT/UCC in Dresden. In the meantime, we also participate in numerous research projects in order to bring in our perspective and experience as patients as early as possible. As a Patient Advisory Board, we are of course also the contact for cancer patients and their relatives.

Patient representative

In 2016 and 2021 I was diagnosed with adenocarcinoma in the lung. As a patient representative in the Patient Advisory Board of the NCT/UCC Dresden, I accompany research projects and participate in the events of the Patient Expert Academy (PEAK).

Patient representative

Head of the self-help group leukemia and lymphoma in Dresden

In 2008 I was diagnosed with lymphoma. After two years of recovery I looked for a volunteer project and until today it has become four. As a patient representative in the Patient Advisory Board of the NCT/UCC Dresden I like to stand up for the concerns of patients and their relatives.

Patient representative

Deputy Spokesman of the Patient Advisory Board

In 2016, I developed malignant melanoma. Two years later, two brain metastases and several metastases in the abdomen were found. Since 2018, I have been successfully participating in a medical trial at Dresden University Hospital.
As a member of the patient advisory board, I have been involved in the NCT/UCC Dresden since 2020.

Deputy Spokesman of the Patient Advisory Board

Since 2011, I have been closely associated with the University Hospital Dresden due to the treatment of multiple myeloma. Because of this diagnosis, I am involved in the Patient Advisory Board of the NCT/UCC Dresden. Here I can actively advocate for the concerns and needs of patients and their relatives.

Patient representative
Board member and patient representative Leukämiehilfe RHEIN-MAIN e.V.

In 2012 I was diagnosed with the disease Myelodisplastic Syndrome (MDS). From the beginning I have been a patient at the University Hospital Dresden and also received a stem cell transplant here. I slowly grew into the patient self-help organization Leukämiehilfe RHEIN-MAIN e. V.. At the beginning as a patient seeking help, today as a patient representative for MDS and AML patients, as well as a board member.
In addition to supporting patients and their relatives, it is particularly important to me to contribute my experience as a patient to research and development.

Patient representative

Due to an incidental finding, I was diagnosed with malignant melanoma at the University Hospital Dresden in 2019. Thanks to the exemplary treatment and care at the NCT/UCC Dresden, I have a recovery status to date. I am pleased to be part of the Patient Advisory Board since 2021.

Patient representative

I was diagnosed with bladder cancer in 1996. I have been involved in the Patient Advisory Board since 2012 and support patients and their relatives, among other things, as a contact person in the patient café.

Patient representative

I was diagnosed with Acute Myeloid Leukemia (AML) at the end of 2015 and have been a satisfied patient at Dresden University Hospital ever since. In 2018, I underwent a stem cell transplant. Since 2020, I have been active in the Patient Advisory Board of the NCT/UCC Dresden. I like to help other patients and their relatives with their fears and worries and enjoy participating in events (e.g. rowing against cancer).

Patient representative
Board member of VKS (Verein für Knochenmark- und Stammzellspenden) e.V.

In 2004 I was diagnosed with Chronic Lymphocytic Leukemia (CLL). In 2008 I received an allogeneic stem cell transplant at the University Hospital Dresden. For several years I have been volunteering as a patient representative at the NCT/UCC Dresden. I like to be the contact person for patients or their relatives. In order to be well prepared for this, I use my very personal experience as well as my participation in PEAK online seminars (Patient Expert Academy for Tumor Diseases) to further my education.

Patient representative

I was diagnosed with multiple myeloma in February 2022. After 4 months of outpatient chemotherapy, high-dose chemotherapy and autologous stem cell transplantation followed. I have been a member of the Patient Advisory Council since 2023. My concern is to be actively involved in the field of research.