• To continuously register all individuals with newly diagnosed RCC, MDS, MDS/MPS
or genetic predisposition for these disorders (incidence)
• To document the initial diagnostic work-up in reference laboratories
• To document their clinical characteristics, treatment and outcome data
(hematological and non-hematological phenotype, treatment decisions, treatment,
follow-up health status, survival)
• To assess biological disease features and correlate them with genetic, clinical and
outcome data (prognostic markers)
• To assess social determinants of health and correlate them with clinical,
psychosocial, geographic and quality of life parameters (health equity, inclusion)
