NHL-BFM Registry

All children and adolescents with non-Hodgkin lymphoma from Germany, Austria, the Czech Republic and German-speaking Switzerland will be registered in the NHL-BFM Registry. The registry does not introduce any new therapies, but rather refers to the best currently available therapy based on the experience of previous studies and the literature. Inclusion in the registry also enables quality assurance through a second assessment by reference institutes and a co-assessment of the findings by the NHL-BFM study centre. Based on the experience of the study centre, individual advice can be given to the treating physicians in the form of a medical opinion.

All children and adolescents with non-Hodgkin lymphoma from Germany, Austria, the Czech Republic and German-speaking Switzerland will be registered in the NHL-BFM Registry . The registry does not introduce any new therapies, but rather refers to the best currently available therapy based on the experience of previous studies and the literature. Inclusion in the registry also enables quality assurance through a second assessment by reference institutes and a co-assessment of the findings by the NHL-BFM study centre. Based on the experience of the study centre, individual advice can be given to the treating physicians in the form of a medical opinion.

{ "short_title": "NHL-BFM Registry", "data_mode": "900", "data_mode_number": "000000979", "official_title": "Registry of the NHL-BFM study group for all subtypes of Non-Hodgkin lymphoma diagnosed in children and adolescents\r\n(Register der NHL-BFM Studiengruppe f\u00fcr alle Subtypen des Non-Hodgkin-Lymphoms bei Kindern und Jugendlichen)", "accrual_state": "running", "therapeutic_value": "nonTherapeutic", "therapieansatz_value": null, "therapieintervention_value": null, "therapielinie_value": null, "ctgov_number": null, "eudract_number": null, "general_contact_email": "Kik-dokuteam-hs65@ukdd.de", "general_contact_phone": "+49 351-4585035", "hauptpruefer_dd_name": "Tobias D\u00e4britz", "description_laie_de": "In das NHL-BFM Registry werden alle Kinder und Jugendliche mit einem Non-Hodgkin Lymphom aus Deutschland, \u00d6sterreich, Tschechien und dem deutschsprachigen Raum der Schweiz, registriert. Mit dem Register werden keine neuen Therapien eingef\u00fchrt, vielmehr wird auf die beste zurzeit verf\u00fcgbare Therapie aus den Erfahrungen der Vorg\u00e4ngerstudien und der Literatur verwiesen. Durch Aufnahme in das Register wird zudem eine Qualit\u00e4tssicherung durch eine Zweitbeurteilung durch Referenzinstitute und eine Mitbewertung der Befunde durch die NHL-BFM Studienzentrale m\u00f6glich. Im Sinne einer \u00e4rztlichen Zweitmeinung kann aufgrund der Erfahrung der Studienzentrale eine individuelle Beratung der behandelnden \u00c4rzte erfolgen.", "description_laie_en": "All children and adolescents with non-Hodgkin lymphoma from Germany, Austria, the Czech Republic and German-speaking Switzerland will be registered in the NHL-BFM Registry . The registry does not introduce any new therapies, but rather refers to the best currently available therapy based on the experience of previous studies and the literature. Inclusion in the registry also enables quality assurance through a second assessment by reference institutes and a co-assessment of the findings by the NHL-BFM study centre. Based on the experience of the study centre, individual advice can be given to the treating physicians in the form of a medical opinion.", "description_expert_de": "In das NHL-BFM Registry werden alle Kinder und Jugendliche mit einem Non-Hodgkin Lymphom aus Deutschland, \u00d6sterreich, Tschechien und dem deutschsprachigen Raum der Schweiz, registriert. Mit dem Register werden keine neuen Therapien eingef\u00fchrt, vielmehr wird auf die beste zurzeit verf\u00fcgbare Therapie aus den Erfahrungen der Vorg\u00e4ngerstudien und der Literatur verwiesen. Durch Aufnahme in das Register wird zudem eine Qualit\u00e4tssicherung durch eine Zweitbeurteilung durch Referenzinstitute und eine Mitbewertung der Befunde durch die NHL-BFM Studienzentrale m\u00f6glich. Im Sinne einer \u00e4rztlichen Zweitmeinung kann aufgrund der Erfahrung der Studienzentrale eine individuelle Beratung der behandelnden \u00c4rzte erfolgen.", "description_expert_en": "All children and adolescents with non-Hodgkin lymphoma from Germany, Austria, the Czech Republic and German-speaking Switzerland will be registered in the NHL-BFM Registry. The registry does not introduce any new therapies, but rather refers to the best currently available therapy based on the experience of previous studies and the literature. Inclusion in the registry also enables quality assurance through a second assessment by reference institutes and a co-assessment of the findings by the NHL-BFM study centre. Based on the experience of the study centre, individual advice can be given to the treating physicians in the form of a medical opinion.", "rechtsgrundlage_value": "BO", "phase_amg_value": null, "main_cat_id": 14, "sub_cat_id": 65 }

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