A. The CESS Registry will collect long-term data from EwS patients who had
participated in Cooperative Ewing Sarcoma Study (CESS) group trials.
B. Eligible Patients, but ineligible to participate in clinical trials for any reason,
or when no clinical trial is available, can be included in the CESS Registry.
The CESS Registry will help to collect basic population-based data which will
be useful for ancillary studies and as a comparator to ongoing clinical trials.
By nature, the CESS Registry plan will not offer any treatment and diagnostic
procedures recommendations nor follow-up plans.
