Objective:
Collection of long-term follow-up data that goes beyond clinical trials
Collection of data from patients receiving standard treatment if no current clinical trial is available
Collection of data from patients who do not fulfil the criteria for clinical trials
Therapy/study arms:
The International Euro Ewing Registry is a multinational Ewing sarcoma (EwS) registry. It includes all newly diagnosed patients with localised or metastatic EwS who cannot be included in ongoing clinical trials. Patients from clinical trials can also be included in the registry after their completion for long-term follow-up. The registry is also open to patients with so-called ‘atypical EwS’ or ‘Ewing-like sarcomas’. In contrast to the clinical trials, there is no age limit. Biomaterial from registry participants is collected in the GPOH-CESS biobank for accompanying studies, as there is a great need for research into genetic diagnostic and therapeutic approaches.
The registry does not provide a treatment plan. If no clinical trial is available, patients are treated according to the standard treatment.
