Description for experts
The iHIT-HGG registry collects epidemiological, diagnostic and clinical data from paediatric patients and young adults who are being or have been treated at a GPOH paediatric oncology centre in Germany, Austria or Switzerland. Our aim is to gain new insights into these very rare tumour diseases through continuous international cooperation.
The participation of oncological centres beyond the GPOH is very welcome.
Description for laymen
JSON Data
{
"short_title": "iHIT-HGG Register",
"data_mode": "900",
"data_mode_number": "000002474",
"official_title": "Internationales Register der HIT-HGG Studiengruppe f\u00fcr p\u00e4diatrische Patienten und junge Erwachsene mit hochgradigem Gliom (International Registry of the HIT-HGG Study Group for Paediatric Patients and Young Adults with High Grade Gliomas)",
"accrual_state": "running",
"therapeutic_value": "nonTherapeutic",
"therapieansatz_value": null,
"therapieintervention_value": null,
"therapielinie_value": null,
"ctgov_number": null,
"eudract_number": null,
"general_contact_email": "Kik-dokuteam-hs65@ukdd.de",
"general_contact_phone": "+49 351-4585035",
"hauptpruefer_dd_name": "Dr. med. Claudia Zinke",
"description_laie_de": "Das iHIT-HGG Register sammelt epidemiologische, diagnostische und klinische Daten von p\u00e4diatrischen Patienten und jungen Erwachsenen, die an einem p\u00e4diatrisch-onkologischen Zentrum der GPOH in Deutschland, \u00d6sterreich oder der Schweiz behandelt werden oder wurden. Unser Ziel ist die Gewinnung neuer Erkenntnisse zu diesen sehr seltenen Tumorerkrankungen durch eine kontinuierliche internationale Kooperation.\r\nDie Teilnahme onkologischer Zentren \u00fcber die GPOH hinaus wird sehr begr\u00fc\u00dft.",
"description_laie_en": null,
"description_expert_de": null,
"description_expert_en": "The iHIT-HGG registry collects epidemiological, diagnostic and clinical data from paediatric patients and young adults who are being or have been treated at a GPOH paediatric oncology centre in Germany, Austria or Switzerland. Our aim is to gain new insights into these very rare tumour diseases through continuous international cooperation.\r\nThe participation of oncological centres beyond the GPOH is very welcome.",
"rechtsgrundlage_value": "BO",
"phase_amg_value": null,
"main_cat_id": 14,
"sub_cat_id": 62
}
