MET Register

Recommendations on the diagnosis, treatment and aftercare of malignant endocrine tumours in children and adolescents are not part of the new MET Registry (protocol). For the entities covered by the MET registry (ACT, DTC, MTC, NET, PPGL), the physicians responsible for their treatment are provided with published national recommendations on diagnosis and treatment based on current knowledge and current analyses of the MET registry, which are not part of the registry protocol. A European recommendation is already available for the entity of ACT (Virgone, C., et al., Pediatr Blood Cancer, 2021). If required, a patient-specific counselling request can be submitted to the MET Help Desk. For this purpose, a corresponding declaration of consent must be obtained from the treating clinic for the respective patient (aged 16 and over) and/or their legal guardian. Translated with DeepL.com (free version)

{ "short_title": "MET Register", "data_mode": "900", "data_mode_number": "000000983", "official_title": "Register zur Erfassung maligner endokriner Tumoren im Kindes- und Jugendalter", "accrual_state": "running", "therapeutic_value": "therapeutic", "therapieansatz_value": null, "therapieintervention_value": null, "therapielinie_value": null, "ctgov_number": null, "eudract_number": null, "general_contact_email": "Kik-dokuteam-hs65@ukdd.de", "general_contact_phone": "+49 351-4585035", "hauptpruefer_dd_name": "Tobias D\u00e4britz", "description_laie_de": "Empfehlungen zu Diagnostik, Therapie und Nachsorge maligner endokriner Tumoren im Kindes- und Jugendalter sind nicht Teil des neuen MET Register(protokoll)s. Den verantwortlich behandelnden \u00c4rzten werden f\u00fcr die im MET Register erfassten Entit\u00e4ten (ACT, DTC, MTC, NET, PPGL) publizierte nationale Empfehlungen zu Diagnostik und Therapie auf Basis des aktuellen Wissens und aktueller Auswertungen des MET Registers zur Verf\u00fcgung gestellt, die nicht Bestandteil des Registerprotokolls sind.\r\nF\u00fcr die Entit\u00e4t der ACT liegt bereits eine europ\u00e4ische Empfehlung vor (Virgone, C., et al., Pediatr Blood Cancer, 2021).\r\n\r\nBei Bedarf kann eine patientenspezifische Beratungsanfrage an das MET Help-Desk gestellt werden. Hierzu muss f\u00fcr den jeweiligen Patienten (ab 16 Jahren) und/oder dessen Sorgeberechtigten eine entsprechende Einwilligungserkl\u00e4rung durch die behandelnde Klinik eingeholt werden.", "description_laie_en": "Recommendations on the diagnosis, treatment and aftercare of malignant endocrine tumours in children and adolescents are not part of the new MET Registry (protocol). For the entities covered by the MET registry (ACT, DTC, MTC, NET, PPGL), the physicians responsible for their treatment are provided with published national recommendations on diagnosis and treatment based on current knowledge and current analyses of the MET registry, which are not part of the registry protocol.\r\nA European recommendation is already available for the entity of ACT (Virgone, C., et al., Pediatr Blood Cancer, 2021).\r\n\r\nIf required, a patient-specific counselling request can be submitted to the MET Help Desk. For this purpose, a corresponding declaration of consent must be obtained from the treating clinic for the respective patient (aged 16 and over) and/or their legal guardian.\r\n\r\nTranslated with DeepL.com (free version)", "description_expert_de": "Empfehlungen zu Diagnostik, Therapie und Nachsorge maligner endokriner Tumoren im Kindes- und Jugendalter sind nicht Teil des neuen MET Register(protokoll)s. Den verantwortlich behandelnden \u00c4rzten werden f\u00fcr die im MET Register erfassten Entit\u00e4ten (ACT, DTC, MTC, NET, PPGL) publizierte nationale Empfehlungen zu Diagnostik und Therapie auf Basis des aktuellen Wissens und aktueller Auswertungen des MET Registers zur Verf\u00fcgung gestellt, die nicht Bestandteil des Registerprotokolls sind.\r\nF\u00fcr die Entit\u00e4t der ACT liegt bereits eine europ\u00e4ische Empfehlung vor (Virgone, C., et al., Pediatr Blood Cancer, 2021).\r\n\r\nBei Bedarf kann eine patientenspezifische Beratungsanfrage an das MET Help-Desk gestellt werden. Hierzu muss f\u00fcr den jeweiligen Patienten (ab 16 Jahren) und/oder dessen Sorgeberechtigten eine entsprechende Einwilligungserkl\u00e4rung durch die behandelnde Klinik eingeholt werden.", "description_expert_en": "Recommendations on the diagnosis, treatment and aftercare of malignant endocrine tumours in children and adolescents are not part of the new MET Registry (protocol). For the entities covered by the MET registry (ACT, DTC, MTC, NET, PPGL), the physicians responsible for their treatment are provided with published national recommendations on diagnosis and treatment based on current knowledge and current analyses of the MET registry, which are not part of the registry protocol.\r\nA European recommendation is already available for the entity of ACT (Virgone, C., et al., Pediatr Blood Cancer, 2021).\r\n\r\nIf required, a patient-specific counselling request can be submitted to the MET Help Desk. For this purpose, a corresponding declaration of consent must be obtained from the treating clinic for the respective patient (aged 16 and over) and/or their legal guardian.\r\n\r\nTranslated with DeepL.com (free version)", "rechtsgrundlage_value": "BO", "phase_amg_value": null, "main_cat_id": 14, "sub_cat_id": 64 }