The registry is intended to prospectively record socio-demographic and clinical-diagnostic data as well as the course of the disease, treatment and treatment outcome of included patients with osteosarcoma or other defined bone sarcomas over the long-term. The objectives of the COSS registry are based on the objectives of the epidemiological and clinical state cancer registries.
Furthermore, the COSS registry has the task of continuously processing data on the occurrence and progression of cancers, including their early stages, and making the collected data available for scientific cancer research.
The other objectives of the registry are
Obtaining information on diagnosis, treatment and disease progression of osteosarcomas and other defined rare bone tumour diseases
Gaining knowledge about patient characteristics and prognosis of the disease
Research into the causes of the disease and identification of (influencing) risk factors
Expansion of the database for clinical and translational research on these entities as a platform for information transfer and further development of a network for interdisciplinary collaboration
Long-term tracking of disease progression in collaboration with specific research groups
Mapping the reality of care and its changes
Use as a recruitment framework (sampling frame) for clinical phase II, phase III or therapy optimisation studies.
